Outreach Partners

Click on the links for contact information and a brief description of the organization.

American Association of Homes and Services for the Aging

Contact	Gary Marshall Senior Information Specialist
Address	2519 Connecticut Avenue, NW
City	Washington, DC 20008-1520
Telephone	202-783-2255
Fax	202-220-0025
Email	memberservices@aahsa.org

The American Association of Homes and Services for the Aging represents 5,600 mission-driven, not-for-profit nursing homes, continuing care retirement communities, assisted living and senior housing facilities, and community-based organizations serving older persons. The association’s vision is a healthy, affordable, ethical aging services system for America. Every day, AAHSA’s members serve more than one million older persons across the country.

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AARP
AARP is the nation's leading organization for people age 50 and older. It serves their needs and interests through information and education, advocacy, and community services which are provided by a network of local chapters and experienced volunteers throughout the country. The organization also offers members a wide range of special benefits and services, including Modern Maturity magazine and the monthly Bulletin.

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American Cancer Society

Contact	Sheila Buchert Director, Media and Corporate Strategies
Address	National Home Office 1599 Clifton Road, NE
City	Atlanta, GA 30329
Telephone	727-343-5919
Fax	727-345-3559
Email	sbuchert@cancer.org

The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing the suffering from cancer, through research, education, advocacy and service. It is the largest and most-trusted voluntary health agency in the US with over 2 million volunteers and outreach in more than 3,400 communities nationwide. To ease the impact of cancer on patients and families, the American Cancer Society provides a 24/7 information and help line (800-ACS-2345) which offers access to a comprehensive array of resources, programs and services available at the community-level. These resources are also available on the organization's web site at www.cancer.org.

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American College of Health Care Administrators

Contact	Mary Tellis-Nayak
Address	300 N. Lee St. #301
City	Alexandria, VA 22307
Telephone	(703) 739-7900
Fax
Email	mtn@achca.org

The American College of Health Care Administrators is the leading national professional society for administrators in long-term care. It offers excellent educational programming, career development opportunities and certification in a variety of positions. Approximately 4,500 administrators belong to ACHCA, which enhances their professional development through education-an approach that improves the quality of the care that they provide.

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Age Concern (Bermuda)

Contact	Claudette Fleming Executive Director
Address	P.O. Box HM 2397
City	Hamilton HM JX, Bermuda
Telephone	441-238-7525
Fax	441-238-7178
Email	ageconcern@northrock.bm

Our Mission: Age Concern exists to create the conditions that make the best of older persons lives in Bermuda through advocacy, education, information and in partnerships with other organizations. Our Purpose: To become the leading connecting resource in the synergy of seniors’ services in Bermuda. Our Vision: To formulate a National Advisory Council on Aging, a National Network Coalition of Aging Services and a National Action Plan toward the highest quality of life for Bermuda’s older citizens.

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American Network of Community Options and Resources (ANCOR)

Contact	Renee Pietrangelo
Address	1101 King St.
City	Alexandria VA 22314
Telephone	703 535-7850
Email	rpietrangelo@ancor.org

ANCOR is a nonprofit association of providers offering supports and services to people with disabilities. ANCOR represents nearly 700 providers nationwide who serve over 160,000 people with disabilities and their families. We provide our members with information, resources, education and training, and technical assistance; and advocate for their interests on the federal level. We also serve as a nexus for networking and mentoring among member agencies. As providers of community-based supports and services, we advocate consumer choice and full community integration. We promote an optimal quality of life for people with disabilities to increase self-dependence, productivity, well-being and inclusion.

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Alzheimer's Disease and Related Disorders Association, Inc.

Contact	Lorraine Willmot Associate Director, Media Relations
Address	919 North Michigan Avenue, Suite 1100
City	Chicago, IL 60611-1676
Telephone	(800) 272-3900 ext. 5887
Fax	(312) 335-0274
Email	media@alz.org

Mission statement: To eliminate Alzheimer’s disease through the advancement of research and to enhance care and support for individuals, their families, and caregivers. With a national network of chapters serving communities nationwide, the Alzheimer’s Association is the largest national voluntary health organization committed to finding a cure for Alzheimer’s and helping those affected by the disease. The Association is the largest private funder of research into the causes, treatments, prevention, and cure of Alzheimer’s disease, having committed $138 million to date. We also provide education and support for people diagnosed with the condition, their families, and caregivers in diverse communities nationwide. The Alzheimer’s Association was founded in 1980 by family caregivers.

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AAMR

Contact	Chuck Helman
Address	444 North Capitol Street, NW Suite 846
City	Washington, DC 20001-1512
Telephone	202-387-1968
Email	cjhelman@aamr.org

Established in 1876, AAMR supports:

• High-quality services and supports that enable people with mental retardation and their families to live full, inclusive lives at home and in their communities;
• Progressive public policies in Congress, the courts and in state legislatures;
• Universal human rights, respect and dignity for people with disabilities;
• Increased public awareness leading to more positive attitudes about mental retardation;
• Research to prevent unnecessary disability and ameliorate the handicapping effects of existing disabilities.

AAMR publishes two internationally respected professional journals, books, a newsletter, fact sheets and policy statements. The Association sponsors seminars, an annual convention and training programs, while working for progressive disability policy in Washington, in the states and throughout the world. More than 8,000 disability professionals belong to AAMR while another 30,000 individuals participate in association activities or purchase products.

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American Parkinson Disease Association (APDA)

Contact	Joel Gerstel Executive Director
Address	1250 Hylan Blvd., Suite 4B
City	Staten Island, NY 10305
Telephone	800-223-2732
Email	apda@apdaparkinson.org

The American Parkinson Disease Association is the largest nonprofit grassroots Parkinson's organization in the country. Our mission is "to ease the burden and to find the cure," and we do this through funding medical research and providing outreach and education to patients, family members and caregivers. We operate over 1000 Support Groups, 57 Information and Referral Centers and 65 Chapters nationwide. Working alongside the nation's top medical institutions and professionals, The American Parkinson Disease Association finds 7 Centers for Advanced Research, which work extensively into finding the origins and the cure for Parkinson's Disease. APDA also offers 5 types of medical research grants.

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American Red Cross

Contact	Chrisa Arcan Sr. Associate, Lifeline
Address	Health, Safety and Community Services American Red Cross National Headquarters
City	Falls Church, VA 22042
Telephone	(703) 206-6992
Fax	(703) 206-6825
Email	arcanc@usa.redcross.org

The American Red Cross is dedicated to saving lives, easing suffering and restoring hope at home and around the world. The Red Cross annually mobilizes relief to the victims of thousands of disasters nationally and internationally and is the primary supplier of lifesaving blood and blood products in the United States. Its emergency communication centers support U.S. military families. Last year, the Red Cross trained 12 million people in vital lifesaving skills. Many Red Cross chapters respond to local community needs by annually providing approximately 22 million services to individuals such as hot meals for the homebound and transportation to medical appointments.

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American Stroke Association
A Division of American Heart Association

Contact	Erin Hutchinson
Address	7272 Greenville Avenue
City	Dallas, TX 75231
Telephone	214-706-1433
Fax	214-706-5231
Email	erin.hutchinson@heart.org

The American Stroke Association's mission is to reduce disability and death from stroke through research, education, fundraising, and advocacy. As a Division of American Heart Association, the American Stroke Association leverages credible science, a strong reputation, and a nationwide infrastructure of Affiliates to advance its mission. By providing effective, credible information to prevent and treat stroke by 25% by 2010. In the 2000-20001 fiscal year, the American Stroke Association spent almost $86 million on stroke-related research, educational programs and advocacy, more than any other non-profit organization, and second only to the Federal government in dedicated stroke funding.

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Americans for Better Care of the Dying (ABCD)

Contact	Janice Lynch Schuster Director of Communications
Address	4125 Albemarle Street, NW
City	Washington, DC 20015
Telephone	202-895-9485
Fax	202-895-9484
Email	jmlynch@abcd-caring.org

ABCD is a national, not-for-profit organization dedicated to ensuring excellent end-of-life care for all people with serious, eventually fatal illnesses and their families. We push for change by educating the public, healthcare professionals, and policy makers. Caregivers will appreciate online, free publications.

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ARCH National Respite Network and Resource Center

Contact	Maggie Edgar
Address	807 North 50th St.
City	Seattle, WA 98103
Telephone	(206)547-4118
Fax	(206) 632-5208
Email	edgar@zipcon.net

The mission of the ARCH National Respite Network and Resource Center is to assist and promote the development of quality respite and crisis care programs, to help families locate respite and crisis care services in their communities, and to serve as a strong voice for respite in all forums. Network membership is comprised of representatives from State Respite Coalitions, family caregivers, social service personnel, and advocates for respite care across the lifespan.

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CareScout

Contact	Lenka Benova
Address	36 Washington St, Ste 170
City	Wellesley, MA 02481
Telephone	(781) 431-7033
Fax
Email	lbenova@carescout.com

"CareScout is a company dedicated to helping Americans make intelligent elder care decisions. CareScout connects Americans to the best eldercare and caregiving information, ratings and products. CareScout's first of its kind searchable database and Quality of Care information about Nursing Homes, Assisted Living Facilities, Home Care Agencies and Hospices is supplemented by The CareScout Network offering private pay consumers discounts on care."

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Rosalynn Carter Institute for Human Development (RCI)

Contact	Ronda C. Talley, PhD, MPH Executive Director
Address	800 Wheatley Street
City	Americus, GA 31709
Telephone	229.928.1234
Fax	229.931.2663
Email	talleyrc@rci.gsw.edu

The Rosalynn Carter Institute for Human Development was formed in honor of First Lady Rosalynn Carter in 1987. Through research, education, and training, the RCI promotes the mental health and well-being of individuals, families, and professional caregivers; delineates effective caregiving practices; builds public awareness of caregiving needs; and advances public and social policies that enhance caring communities. These goals are met by forming partnerships with professionals, groups, and individuals to deliver education and training programs, research and program evaluation around caregiving needs, and policy and advocacy efforts that promote healthy individual development and increase community caregiving capacity.

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Catholic Charities USA

Contact	Jane Stenson
Address	1731 King Street
City	Alexandria, VA 22314
Email	jstenson@catholiccharitiesusa.org

Catholic Charities USA is a membership organization based in Alexandria, Virginia. By providing leadership, technical assistance, training, and other resources, the national office enables local agencies to better devote their own resources to serving their communities. Catholic Charities USA promotes innovative strategies that address human needs and social injustices. The national office also advocates for social policies that aim to reduce poverty, improve the lives of children and families, and strengthen communities. The Disaster Response Office organizes the Catholic community's response to disasters in the United States.

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Children of Aging Parents

Contact	Brian Duke
Address	1609 Woodburne Rd, Suite 302A
City	Levittown, PA 19057
Phone	215-945-6900 or 1-800-227-7294
Email	CAPS4caregivers@aol.com

Children of Aging Parents (CAPS) is a nonprofit membership organization which through 25 years of service has continued the mission of enhancing the lives of family caregivers of older persons through the establishment and facilitation of support groups, information and referral services and educational outreach. Each year CAPS has contact with its 1800 members and with over 20,000 caregivers through a toll free help line, support groups, educational events and web site. CAPS works with family members, businesses, faith communities and government agencies to establish caregiver support groups in local communities and lend support to caregivers in need. There are over 60 support groups in 12 states. In addition, the book "Aging Parents and Common Sense" and "The CAPSule," our newsletter published six times a year, are frequently requested resources.

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EAP - International Employee Assistance Professionals Association

Contact	Allyson O'Sullivan
Address	2101 Wilson Blvd Suite 500
City	Arlington, VA 22201-3062
Telephone	703-387-1000
Email	a.osullivan@eap-association.org

The Employee Assistance Professionals Association promotes the highest standards of practice and the continuing development of employee assistance professionals and the continuing development of employee assistance professionals and programs. EAPA sets standards for employee assistance programs, establishes definitions for the profession, and maintains a code of ethics for EA professionals. The more than 6,000 members of EAP manage employee assistance programs and provide EAP-related services in the United States, Canada, and more than 20 other countries.

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Community-State Partnerships

Contact	Carolen Collins
Address	1021 Jefferson Street
City	Kansas City, MO 64105
Telephone	816-842-7110
Email	partners@midbio.org

The Community-State Partnerships program supports 21 broud-based coalitions working with citizens, health care professionals, educators and policymakers to build public support for practical policies and programs that improve care of the dying. Housed at Midwest Bioethics Center, the program is funded through The Robert Wood Johnson Foundation. Publications include the "State Initiatives" policy brief series and "Media Tactics." Contact state coalition leaders through the www.midbio.org Website: AL, CA, CT, FL, HI, IA, KS, KY, ME, MI, MN, NC, ND, NH, NJ, NV, OK, RI, UT, WV and District of Columbia.

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Faith In Action

Contact	Jo Heather C. Layton Communications Manager
Address	Wake Forest University School of Medicine Medical Center Blvd.
City	Winston-Salem NC 27157-1204
Telephone	877-324-8411
Fax	336-716-3346
Email	jhlayton@wfubmc.edu

Faith in Action is a national program of The Robert Wood Johnson Foundation, which makes grants to local groups of volunteers representing many faiths. These groups work together to care for their neighbors who are frail or who have long-term illnesses or disabilities. Volunteers help with many everyday activities, such as picking up groceries or providing a ride to the doctor. With this volunteer assistance, members of the community who have long-term health conditions can maintain their independence for as long as possible. There are more than 1,100 interfaith volunteer caregiving Faith in Action programs across the country.

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Easter Seals

Contact	Jed D. Johnson, MSW, MBA Assistant Vice President, Adult & Senior Services
Address	230 W. Monroe Street, Suite 1800
City	Chicago, IL 60606
Telephone	(312) 551-7174
Fax	(312) 726-8623
Email	jjohnson@easter-seals.org

Founded in 1919, Easter Seals is an acknowledged pioneer in rehabilitation and support services to meet the needs of people with disabilities. Easter Seals mission is to create solutions that change the lives of children and adults with disabilities and other special needs and their families. Easter Seals offers five primary services: (1) medical rehabilitation (2) job training and employment (3) inclusive child care (4) adult day services, and (5) camping, respite, and recreation.

Easter Seals is a nationwide network of affiliate societies in each of the 50 states, the District of Columbia and Puerto Rico, all working together to serve more than one million people each year.

General Information and referral line is 1.800.221.6827 or info@easter-seals.org

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National Organization For Empowering Caregivers (NOFEC)

Contact	Gail Mitchell
Address	425 West 23rd Street Suite 9B
City	New York, NY 10011
Telephone	212 807-1204
Email	grm@nofec.org

NOFEC provides information, emotional and spiritual support and empowerment for millions of family members who care for chronically ill, disabled, elderly or terminally ill loved ones. NOFEC also serves professionals.

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Family Caregiver Alliance

Contact	Bonnie Lawrence
Address	690 Market Street Suite 600
City	San Francisco, CA 94104
Telephone	415-434-3388
Email	blawrence@caregiver.org

Widely recognized as a pioneer among health services agencies, Family Caregiver Alliance operates programs at the national, state and local levels. FCA serves as a public voice for caregivers, and provides information, publications, educational programs, respite, research and policy and program development. Among its programs are the National Center on Caregiving, the San Francisco Bay Area Caregiver Resource Center, and the Statewide Resources Consultant for California's system of Caregiver Resource Centers. FCA is currently celebrating its 25th anniversary.

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Fifty-Plus Fitness Association

Contact	Ray S. Stewart Executive Director
Address	PO Box 20230
City	Stanford CA
Telephone	650 323-6160
Fax	650 323-6119
Email	info@50plus.org

Fifty-Plus Fitness is a national organization whose mission is to provide a longer and more enjoyable life for adults by expanding awareness and involvement in health and fitness activities. There are approximately 2000 members.

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Health Ministries, U.S.A., PCUSA

Contact	Joy Raatz Program & Resource Development Coordinator
Address	100 Witherspoon Street
City	Louisville KY 40202
Telephone	502 569-5267
Fax	502 659-8034
Email	jraatz@ctr.pcusa.org

Health Ministries seeks to enable and empower indiidual Prebysterians, congregations, and governing bodies for the ministry of health, healing and wholeness. To carry out this mission, Health Ministries promotes health in all aspects of the life of the church through health promotion and education, program development and advocacy. We provide health information, programs and resources to over 18,000 congregations with a total membership of 2.5 million nationwide.

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Home Instead Senior Care

Contact	Scott Dingfield Marketing Manager
Address	604 North 109th Court
City	Omaha, NE 68154
Telephone	(402) 498 4466
Fax	(402) 498-5757
Email	sdingfield@homeinstead.com

Home Instead Senior Care is the world's largest provider of comprehensive, non-medical companionship and home care services for the elderly. The company's primary services include companionship, meal preparation, medication reminders, light housework, incidental transportation, errands and shopping. These services are provided through a network of more than 350 franchise offices located throughout the United States, Canada and Japan.

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Hospice Foundation of America (HFA)

Contact	Jon Radulovic Communications Director
Address	2001 S Street, NW, Suite 300
City	Washington, DC 20009
Telephone	1-800-854-3402
Fax	202-638-5312
Email	Jon@hospicefoundation.org

Hospice Foundation of America is a non-profit organization that provides leadership in the development and application of hospice and its philosophy of care. HFA works to promote hospice care and educate healthcare professionals and the families they serve in issues relating to end-of-life care, loss, grief and bereavement. Annually, HFA produces the award-winning National Bereavement Teleconference and publishes the Living With Grief book series in conjunction with the teleconference. HFA provides a variety of other resources that includes books, videotapes, audiotapes, brochures, educational articles and their monthly bereavement newsletter, Journeys.

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Health Insurance Association of America (HIAA)

Contact	Winthrop Cashdollar Director, Center for DI and Long Term Care
Address	1201 F Street, NW, Suite 500
City	Washington, DC 20004
Telephone	(202) 824-1790
Fax	(202) 824-1668
Email	wcashdollar@hiaa.org

HIAA is the nation's most prominent trade association representing the private health care system. Its nearly 300 members provide health, long-term care, dental, disability, and supplemental coverage to more than 123 million Americans. It is the nation's premier provider of self-study courses on health insurance and managed care.

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Interfaith Caregivers Alliance (ICA)

Contact	Michele Malone Executive Director
Address	112 West 9th Suite 600
City	Kansas City, MO 64105
Telephone	816-931-5442
Fax	816-931-5202
Email	malone@interfaithcaregivers.org

ICA supports and develops interfaith volunteer caregiving programs throughout the country so that lives and spirits of those who give and receive care may be enriched. These programs provide a ride to the doctor, a friendly visit, or a trip to the store. They rake leaves and shovel snow. They provide respite care to family caregivers, balance checkbooks, or prepare and/or deliver meals. They also act as a link to medical and social services in their community.

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Little Brothers-Friends of the Elderly

Contact	Stacey Foisy PR Director
Address	954 W Washington, Suite 500
City	Chicago, IL 60607
Telephone	(312) 829-3055
Fax	(312) 829-3077
Email	sbreilov.nat@LittleBrothers.org

Little Brothers-Friends of the Elderly is a National non-profit organization committed to relieving isolation and loneliness among the Elderly. We offer to people of good will the opportunity to join the Elderly in friendship and the celebration of life.

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Midwest Bioethics Center

Contact	Carolen Collins
Address	1021 Jefferson Street
City	Kansas City, MO 64105-1329
Telephone	816-221-1100
Email	partners@midbio.org

The Midwest Bioethics Center is a resource center for communities, agencies and professional organizations working on ethical issues and moral dilemmas of health care decision-making and policy, including improving care for seriously ill individuals. A staff of 28 ethicists, nurses, attorneys, clergy and physicians consult on issues such as patients' rights, engaging faith leaders, advance care planning and health care outcomes of vulnerable populations.

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National Adult Day Services Association (NADSA)

Contact	Terry Stone Executive Director
Address	8201 Greensboro Dr., Ste. 300
City	McLean, VA 22102
Telephone	703 610-9035
Fax	703 610-9005
Email	tstone@nadsa.org

The National Adult Day Services Association is the leading voice of the rapidly growing adult day service industry in the United States, and the national focal point for adult day services providers. Our mission is to enhance the success of our members by providing advocacy, education, technical assistance, research and community services.

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National Alliance for Caregiving

Contact	Gail Hunt Executive Director
Address	4720 Montgomery Lane Suite 642
City	Bethesda, MD 20814
Telephone	301-718-8444
Fax	301-652-7711
Email	gailhunt.nac@erols.com

The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. Recognizing that family caregivers provide important societal and financial contributions toward maintaining the well-being of those they care for, the Alliance's mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. The Alliance is a coalition of 30 national corporations and non-profit organizations.

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National Association of Area Agencies on Aging (n4a)

Contact	Adrienne Dern Deputy Director
Address	927 15th Street, NW
City	Washington, DC 20005
Telephone	202-296-8130
Fax	202-296-8134
Email	adern@n4a.org

The National Association of Area Agencies on Aging (n4a) is the umbrella organization for our nation's 655 area agencies on aging (AAAs) and the representative body in Washington, D.C., for the interests of 220 Title VI Native American aging programs. Through its presence in Washington, n4a advocates on behalf of the local aging agencies to ensure that needed resources and support services are available to older Americans. The fundamental mission of the AAA and Title VI programs is to provide services that make it possible for older individuals to remain in their home, thereby preserving their independence and dignity.

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National Association of State Units on Aging

Contact	Bernice Hutchinson Director of Peer Mentoring and Training
Address	1201 15th Street Suite 350
City	Washington, DC 20005
Telephone	202-898-2578
Fax	202-898-2583
Email	bhutchinson@nasua.org

The mission of the National Association of State Units on Aging is to advance social, health and economic policies responsive to the needs of a diverse aging population and to enhance the capacity of the membership to promote the rights, dignity and independence of and to expand opportunities and resources for current and future generations of older persons, adults with disabilities and their families.

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National Association of Social Workers

Contact	Gail Woods Waller
Address	750 First Street, NE Suite 700
City	Washington, DC 20002-4241
Telephone	202 336-8236
Email	gwaller@naswdc.org

The National Association of Social Workers (NASW) is the largest organization of professional social workers in the world. Representing 150,000 members, the association promotes, develops, and protects the practice of social work and social workers. NASW also seeks to enhance the well being of individuals, families, and communities through its work and advocacy. Professional social workers practice in many settings, including schools hospitals, community organizations, corporations, government agencies, research organizations, educational institutions, and private practices.

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National Family Caregivers Association (NFCA)

Contact	Suzanne Mintz
Address	10400 Connecticut Avenue Suite 300
City	Kensington, MD 20895
Telephone	301-942-6430
Email	suzanne@nfcacares.org

The National Family Caregivers Association (NFCA) is a non-profit organization dedicated to supporting and improving the lives of America's family caregivers. NFCA was created to educate, support, empower and advocate for the millions of Americans who care for their ill, aged or disabled loved ones. NFCA reaches across the boundaries of different diagnoses, different relationships, and different life stages to address the common needs and concerns of all family caregivers. It is the only place that all family caregivers can call "home".

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National Committee to Preserve Social Security & Medicare

Contact	Ouida H. Williams
Address	10 G Street N.E. Suite 600
City	Washington, DC 20002
Telephone	202 216-8405
Email	williamso@ncpssm.org

The National Committee to Preserve Social Security (NCPSSM) is a nonprofit education and advocacy organization dedicated to protecting the guaranteed benefits of Social Security and Medicare, and addressing related issues such as making prescription drug coverage a part of Medicare, and support for long term care programs, including the Older Americans Act. With millions of members and supporters across America, NCPSSM is one of the nation's leading grassroots citizens' organizations devoted to the retirement future of all citizens - from the "twenty something" generation and baby boomers to the nation's thirty-four million seniors.

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National Council on the Aging

Contact	Scott Parkin Interim Communications Director
Address	409 3rd St., SW Suite 200
City	Washington, DC 20024
Telephone	202 479-1200
Fax	202 479-0735
Email	scott.parkin@ncoa.org

NCOA is the nation's first national non-profit group of people and organizations dedicated to promoting the dignity, independence, wellbeing and contributions of older people. NCOA's members include senior centers, area agencies on aging, adult day services, faith congregations, senior housing, health centers, employment services and consumer organizations.

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National Friends of Public Broadcasting

Contact	Beverly Lundquist
Address	c/o Friends of Thirteen 450 West 33rd Street
City	New York, NY 10001
Telephone	212-560-2800
Email	lundquis@thirteen.org

The mission of the NFPB is to advance through research and educational activities the development and expansion of public broadcasting. The NFPB provides a centralized source for collection and dissemination of information among volunteers and to local and national representatives of the NFPB with regard to specific projects. The NFPB also fosters the development of volunteer groups by encouraging active public support of public broadcastin, by assisting local stations in volunteer recruitment and programs, and by providing leadership for goals and objectives of volunteer programs.

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National Funeral Directors Association

Contact	Laura Glawe
Address	13625 Bishop's Drive
City	Brookfield, WI 53005
Telephone	262-789-1800
Email	lglawe@nfda.org

The National Funeral Directors Association provides advocacy, education, information, products, programs and services to help members enhance the quality of services to families. We are a resource for public and end-of-life groups. NFDA is the world's oldest and largest funeral service association serving about 13,500 members.

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National Health Council

Contact	Mona Holmes
Address	1730 M Street, NW Suite 500
City	Washington, DC 20036-4505

The National Health Council is a nonprofit, umbrella organization whose members represent over 110 national health-related organizatoins. The Council's core constituency is comprised of almost 50 of the country's leading patient organizations, which represent approximately 100 million people with chronic diseases and/or disabilities. Other Council members include professional and membership, nonprofit organizations with an interest in health, and business and industry.

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National Hospice and Palliative Care Organization (NHPCO)

Contact	Scott Vickers
Address	1700 Diagonal Road Suite 625
City	Alexandria, VA 22314
Telephone	703-837-1500
Fax	703-837-1233
Email/strong>	svickers@nhpco.org

The National Hospice and Palliative Care Organization, founded in 1978, is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end-of-life care and expanding access to hospice care with the goal of profoundly enhancing the quality of life for people dying in America and their loved ones. The organization develops public and professional educational programs and materials to enhance understanding and availability of hospice and palliative care; convenes frequent meetings and symposia on emerging issues and provides technical informational resources to its membership.

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National Issues Forums (NIF)

Contact	Patty Dineen
Address	Post Office Box 496
City	Gibsonia, PA 15044
Telephone	724-443-5942
Email	dineenp@msn.com

National Issues Forums (NIF) is a nonpartisan, nationwide network of locally sponsored forums for the consideration of public policy issues. They are rooted in the simple notion that people need to come together to reason and talk- to deliberate about common problems. Indeed, democracy requires an ongoing deliberative dialogue. Forums are sponsored by thousands of organizations and institutions within many communities. They offer citizens the opportunity to join together to deliberate, to make choices with others about ways to approach difficult issues, and to work toward creating public judgment.

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National Mental Health Association

Contact	Michelle Pruett
Address	1021 Prince Street
City	Alexandria, VA 22314
Telephone	703 838-7538
Email	mpruett@nmha.org

The National Mental Health Association is the country's oldest and largest nonprofit organization addressing all aspects of mental health and mental illness. With more than 340 affilliates nationwide, NMHA works to improve the mental health of all Americans through advocacy, education, research and service.

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National Organization For Empowering Caregivers

Contact	Gail Mitchell
Address	425 West 23rd Street Suite 9B
City	New York, NY 10011
Telephone	212 807-1204
Email	grm@nofec.org

The National Organization For Empowering Caregivers (NOFEC) provides information, emotional and spiritual support and empowerment for millions of family members who care for chronically ill, disabled, elderly or terminally ill loved ones. NOFEC also serves professionals.

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National Parkinson Foundation (NPF)

Contact	Gale Kittle, RN, MPH, Assistant National Program Director
Address	1501 N.W. 9th Avenue
City	Miami, FL 33136-1494
Telephone	1-800-327-4545
Fax	(305) 243-4403
Email	gkittle@chw.edu

NPF is a leading international organization with a two-fold mission: To advance research leading to an understanding of Parkinson's and the paths to its cure, and to help those who live with the disease today - through services, education and advocacy - to achieve the best possible quality of life. NPF supports 62 Centers of Excellence in treatment and research throughout the U.S. and internationally. Local chapters, support groups and caregiver symposia reach out to support and educate both patients and caregivers around the country. In addition, NPF operates the most comprehensive and widely used Web site in the Parkinson's community.

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National Partnership for Women & Families

Contact	Nicky Coolberth
Address	1875 Connecticut Avenue, NW Suite 710
City	Washington, DC 20009
Telephone	202 986-2600
Email	ncoolberth@nationialpartnership.org

The National Partnership for Women & Families is a nonprofit, nonpartisan organization that uses public education and advocacy to promote fairness in the workplace, quality health care, and policies that help women and men meet the dual demands of work and family. Founded in 1971 as the Women's Legal Defense Fund, the National Partnership has grown from a small group of volunteers into one of the nation's most powerful and effective advocates for women and families. Working with business, government, unions, nonprofit organizations, and the media the National Partnership is a voice for fairness, a source for solutions, and a force for change.

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National Spinal Cord Injury Association (NSCIA)

Contact	Marcie Roth Executive Director
Address	6701 Democracy Blvd Suite 300-9
City	Bethesda, MD 20817
Telephone	301-588-6959
Fax	301-588-9414
Email	nscia2@aol.com

The Mission of the National Spinal Cord Injury Association (NSCIA) is to educate and empower survivors of spinal cord injury and disease to achieve and maintain higher levels of independence. People with spinal cord injuries and disease, their families and others providing care will find a wealth of information on our web site, from our toll-free help-line and through our nationwide chapters and support group.

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National Organization for Rare Disorders (NORD)

Contact	Jean Campbell Vice President of Development
Address	55 Kenosia Ave. P.O. Box 1968
City	Danbury, CT 06810
Telephone	(203) 744-0100
Fax
Email	jcampbell@rarediseases.org

NORD gives "voice" to the 25 million Americans affected by over 6,000 rare diseases. a non-profit organization founded in 1983, NORD brings together over 130 disease specific member organizations. NORD is committed to the identification, treatment, and cure of rare disorders through programs of educations, advocacy, research and service. NORD is a clearinghouse of information and referrals for rare diseases and disseminates reliable and understandable medical information on these lesser known diseases. NORD is a private non profit and as such is not funded by the federal government.

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Paraprofessional Healthcare Institute (PHI)

Contact	Karen Kahn Director of Communications
Address	349 East 149th Street, Suite 401
City	Bronx, NY 10451
Telephone	(718) 402-7766
Fax	(718) 585-6852
Email	kakahn@attbi.com

The Paraprofessional Healthcare Institute supports quality jobs for direct-care workers across long-term care settings. We believe that higher quality jobs will result in a more committed and stable work force, which will improve the quality of care for consumers. Our work includes developing innovative workplace and caregiving practices that support workers and consumers; public policy initiatives at the state and federal level to improve both the quality of care for long-term care consumers; and research, analysis, and information dissemination through the National Clearing House on Direct Care Workforce. We support a network of paraprofessional staffing agencies and training programs that employ over 900 workers.

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Oncology Nursing Society

Contact	Pearl Moore
Address	125 Enterprise Drive
City	Pittsburgh, PA 15275-1214
Telephone	412-859-6263
Fax	412-859-6164
Email	customer.service@ons.org

The Oncology Nursing Society is a national specialty organization of nearly 28,000 registered nurses and other healthcare professionals dedicated to excellence in patient care, teaching, research, administration and education in the field of oncology. The mission of ONS is to promote excellence in oncology nursing and quality cancer care. Strategic Goals:

• Promote the integration of new scientific information and technology into existing and emerging roles of the oncology nurse;
• Promote a coordinated effort to ensure quality cancer care;
• Create an environment where all members develop leadership skills as an essential component in their practice;
• Increase organizational vitality and visibility.

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Partnership for Caring: America's Voices for the Dying (PFC)

Contact	M. Garey Eakes
Address	1620 Eye Street Suite 202
City	Washington, DC 20006
Telephone	202 296-8071
Email	eakes@partnershipforcaring.org

PFC is a national nonprofit organization devoted to raising consumer expectations and increasing the demand for excellence in end-of-life care. PFC provides direct service to individuals and also works for societal change. PFC operates the only national crisis and information hotline to respond to patients and loved-ones dealing with crisis and end-of-life issues. PFC provides a variety of publications and also maintains an online library of state-specific advance directives. PFC receives funding to develop, facilitate and administer programs related to a wide variety of end-of-life issues. Consumer partners nationwide also support the word of PFC.

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Service Employees International Union (SEIU)

Contacts	Elizabeth McGee
Address	1313 L Street, NW
City	Washington, DC 20005
Telephone	202-898-3386
Fax	202-898-3348
Email	mcgeee@seiu.org

With 755,000 health care members, the Service Employee's International Union (SEIU) is the largest union of health care workers in North America. SEIU members work in hospitals, nursing homes, home health care, HMOs, clinics, and other aspects of the health care delivery system. Almost half of these members work in long-term care settings as certified nurse assistants, home care aides, and other direct care support staff. Together, SEIU members are building a united movement through which they can effectively advocate for workers' rights and quality health care for all.

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Screening for Mental Health

Contact	Joelle M. Reizes Director of Special Projects
Address	One Washington Street, Suite 304
City	Wellesley Hills, MA 02481-1706
Telephone	781-239-0071
Fax
Email	jreizes@mentalhealthscreening.org

Screening for Mental Health, a Boston-based, non-profit organization, provides person-to-person and interactive programs of education and screening to promote early detection and intervention of depression, alcohol problems, and anxiety. These disorders are highly prevalent amongst caregivers due to stress and loss and highly prevalent amongst the aged and those with acute and chronic illness. National Depression Screening Day, the flagship program, takes place on October 10, 2002. Participating hospitals, mental health clinics, primary care doctors, employers and healthcare companies offer free, voluntary screenings for depression and linkage to local mental health resources for follow up and treatment.

To locate a screening site nearby, call 800-520-NDSD-6373 starting September 6th.

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Shepherd's Centers of America

Contact	Elbert Cole, ThD
Address	1 West Armour Boulevard Suite 201
City	Kansas City, MO 64111
Telephone	816 960-2022
Email	staff@shepherdcenters.org

Shepherd's Centers of America is a network of over 100 Shepherd's Centers located in 25 states. Shepherd's Centers have pioneered in life long learning, life enrichment, health education and maintenance, supportive home services, therepeutic caring and caregiving and volunteer services.

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Visiting Nurse Associations of America (VNAA)

Contact	Pamela Sawyer
Address	11 Beacon Street Suite 910
City	Boston, MA O2108
Telephone	617 523-4042 x224
Email	psawyer@vnaa.org

Founded in 1983, Visiting Nurse Associations of America (VNAA) is the official, national, non-profit organization representing freestanding, not-for-profit, community based visiting nurse associations (VNAs). It is VNAA's mission to support, promote and advance VNAs in their nission to serve their communities. VNAs are the cornerstones of public health nursing practices. For over 110 years, they have not only been providers and deliverers of care in the community but the designers and innovators of public health care. VNAs are experienced in responding to public health crises, such as past outbreaks of polio, tuberculosis and smallpox. Recently, VNA nurses were quick to respond on September 11, 2001 to the health care needs of the people of New York City, Washington, D.C. and Pennsylvania. VNAs created the profession of home health care and provide care to all that request services, regardless of ability to pay. All available revenue is reinvested in the respective community to fulfill the charitable mission of the VNAs through services and programs that range from free care to wellness programs. The charitable mission of the VNAs as well as their dedicated commitment to their community makes them an essential component of the health care system.

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Well Spouse Foundation

Contact	Marty Beilin, President
Address	P.O. Box 30093
City	Elkins Park, PA 19027
Telephone	800-838-0879
Fax	215-635-8710
Email	marty@wellspouse.org

"When one is sick or disabled…two need help." Spousal caregivers face similar problems: anger, fear, grief, guilt and isolation. WSF provides support to wives and husbands of chronically ill or disable partners. Our members connect through a national network of local support groups, a website, respite weekends, a newsletter, and an annual conference.

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