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Section 5. Resources for Further Learning and Training
In this section ...
5.1 Quick Reference
Some resources below have been mentioned elsewhere the Action Guide. In addition there is space for you to add resources you find helpful.
Web Sites:
- Administration on Aging - www.aoa.gov - locates area Agencies on Aging, addresses issue of respite and other caregiving topics. [3.1, 3.7]
- CareGivers-USA - www.caregivers-usa.org - a nationwide, non-commercial directory of community-based caregiver support services -- intended to help individuals who are providing care for a family member or friend. All services are free and completely confidential. [3.1]
- ElderCare - www.eldercare.gov - provides information on local services and resources for seniors and caregivers. [3.1, 3.7]
- AARP - www.aarp.org - this site has great resources and information. [3.1]
www.aarp.org/indexes/health.html#caregiving or www.aarp.org/confacts/caregiving/planning.html for planning ahead. [3.3]
- National Family Caregivers Association - www.nfcacares.org - information about caregiving and listing of publications available to caregving community. [3.2]
- Caregiver.com - www.caregiver.com - An internet resource containing back issues of Today's Caregiver Magazine, information on "Sharing Wisdom Caregivers Conferences" and a discussion forum. [3.3]
- National Academy for Teaching and Learning about Aging - www.unt.edu/natla - provides resources for teaching school-aged children about aging. [3.4]
- National Alliance for Caregiving - www.caregiving.org [3.5] -The National Alliance for Caregiving is an organization designed to support family caregivers of the elderly and the professionals who serve them. This site includes studies, tips for caregivers, and a searchable caregiving resources directory. This web site also includes a family care resource center.
- CareGuide - www.careguide.com - This web site offers resources for family caregivers. It includes information on how to assess, plan, manage and monitor the best care for their loved ones. [3.5]
General Sites:
- "And Thou Shalt Honor…" PBS series web site- www.pbscaregivers.org - offers loads of resources and ideas to help you stay updated on all aspects of the series.
- City of Hope Pain Resource Center - www.mayday.coh.org - Provides a guide and index to resources for people in pain and their caregivers, family, and friends.
- Extendedcare.com - www.extendedcare.com - This web site contains an archive of data about aging, health and wellness, and an opportunity to email questions to a geriatric physician. Visitors can take a virtual tour of facilities and search for providers of services online.
- Family Caregiver Alliance - www.caregiver.org - This web site is provided by the Family Caregiver Alliance. It provides a number of resources focusing on caregiving, specific disease-related information and public policy news. Also included in this site is an information clearinghouse on brain impairments and caregiver assistance.
- Generations United - www.gu.org - This site is focused on intergenerational policies and caregivers who are caring for children/grandchildren.
- Grands Place - www.grandsplace.com - This site is geared toward grandparents raising their grandchildren.
- National Asian Pacific Center on Aging - www.napca.org
- National Caucus and Center on Black Aged, Inc. - www.black-aged.org
- National Hispanic Council on Aging - www.nhcoa.org
- National Indian Council on Aging - www.nicoa.org
- Web of Care - www.webofcare.com - Visitors can gain access to a library of caregiving skills and get information about different caregiving situations.
Printed Publications:
- Share the Care: How to Organize a Group to Care for Someone who is Seriously Ill. Copposella, Cappy and Sheila Warnock. New York: Simon & Schuster, 1995 [3.1]
- Complete Idiot's Guide to Meeting and Event Planning. Robin E. Craven and Lynn Johnson Golabowski. Indianapolis: Alphabooks, 2001. [3.1]
- Making Community Meetings Work: Ten Tips for Successful Public Events. Stein, Debra. Washington, D.C.: Urban Land Institute, 1996. [3.1]
- 7 Habits of Highly Effective Families: Building a Beautiful Family Culture in a Turbulent World (abridged). Stephen R. Covey and Sandra Merrill Covey. New York: Golden Books, 1997. [3.2]
- Aging Parents and Common Sense, A Practical Guide for You and Your Parents. 3d. Ed. AXA Foundation, 2000. [3.3]
- The Aging Parent Handbook. Virginia Schomp. Mass Market Paperbacks, 1997. [3.3.]
- How to Care for Aging Parents. Virginia Morris. New York: Workman, 1996. [3.3]
- Circles of Caring: How to Set Up Quality Home Care for Our Elders. Ann Cason. Boston: Shambhala Publications, 2001. [3.5]
General Publications
- Caregiver Companion, a Companion Book to "And Thou Shalt Honor…" RODALE Inc., 2002
- Caregiving: The Spiritual Journey of Love, Loss, and Renewal. Beth Witogen McLeod. New York: John Wiley and Sons, 1999.
- How to Care for Your Parents. Nora Jean Levin. New York: W. W. Norton, 1997.
Other:
- Caregiver Resource Directory
The Caregiver Resource Directory, offered by Beth Israel Medical Center, is a practical guide intended to help family caregivers feel less isolated and overwhelmed. It offers resources, facts and advice about caring for loved ones as well as caregivers. The directory also has pockets and ample writing space so that caregivers can organize all resource and medical information in one place. It can be ordered online at www.stoppain.org/caregivers/resource_form.html
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5.2 Communications Programs and Model Projects
- Last Acts Campaign Workplace Task Force Research Findings and Model Programs
This publication includes a set of model activities it recommends to employers to help their employees plan for an end-of-life situation such as a terminal illness or death of a loved one or co-worker. Ideas for employers are organized as 'no cost', 'low cost', 'moderate cost', and 'high cost' options that workplaces can efficiently provide their employees.
www.lastacts.org/newsg/workplace
- Last Acts Campaign Consumer/Family Resources for Caregivers
Useful products to assist family caregivers. This resources compendium is a shorter version of a more complete list assembled by the Last Acts Family Committee. Resource listings include a summary, the responsible organization and ordering information.
http://www.lastacts.org/statsite/4898la_tsk_publ.html
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5.3 Guidelines/Measurement Tools
- American Medical Association
Tools for caregiver self-assessment. These can be used by physicians, support groups, or caregivers themselves. In English and Spanish.
www.ama-assn.org/ama/pub/category/4642.html
- American Pain Society
Quality Improvement Guidelines for the Treatment of Acute Pain and Cancer Pain
Contact:
Phone (847)-375-4715
Email info@ampainsoc.org
Web www.ampainsoc.org/pub
- Baby Boomers Fear Talking to Parents About Death
A survey in 1999 by the National Hospice Foundation shows Americans are more likely to talk to kids about drugs or sex than discuss terminal illness with parents. This survey can be adapted by local organizations and used as a point of discussion.
www.nho.org/porhtml.htm
- National Alliance for Caregiving
This web site has many resources including community assessment tools, caregiver self-care information, communication issues, and legal issues. It links directly to the AXA Foundation Family Care Resource Connection.
www.caregiving.org/content/fcrc.html
- Kansas University Community Tool Box
Kansas University has developed a unique Community Tool Box in order to
connect people with the resources and information they need to make their
communities what they dream they can be. One section of the Tool Box
provides information about community assessments. The Community Tool Box
also serves to connect people to other web sites and individuals to discuss
and learn more about our common concerns.
http://ctb.ku.edu/tools/EN/part_1002.htm
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